Tuesday 24 July 2018

My MND motion

Below is the motion I submitted to Full Council last week. This was seconded by Cllr Tony Cox (Conservative, West Shoebury). It will be dealt with by Cabinet at their next meeting.

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Notice of Motion for Full Council

That this Council adopts the Motor Neurone Disease (MND) charter and thereby supports achieving quality of life, dignity and respect for people with MND and their carers.

Council notes that over 60 councils across the country have signed up to the Motor Neurone Disease (MND) Charter

The Charter is made up of 5 points:

1. People with MND have the right to an early diagnosis and information
2. People with MND have the right to access quality care and treatments
3. People with MND have the right to be treated as individuals and with dignity and respect
4. People with MND have the right to maximise their quality of life
5. Carers of people with MND have the right to be valued, respected, listened to and well supported

Motion to be moved by Councillor Julian Ware-Lane
Seconded by Councillor Tony Cox

Background:

The Motor Neurone Disease (MND) Association, five-point MND Charter sets out the rights of people with MND and their carers and the pillars of good care and support. Five people a day die in the UK from MND. It is a rapidly progressive, fatal disease that can affect any adult at any time. The disease leaves people unable to walk, talk or feed themselves. The cause of MND is unknown and there is no cure.

* MND is a fatal, neurological disease for which there is no effective treatment and no cure.
* MND kills five people in the UK every day.
* Today there are 5,000 people living with MND in the UK. Life expectancy from diagnosis is two to five years
* It can affect any adult at any age. Imagine being trapped inside a body that can’t move.
* MND attacks the nerves that control movement; people with MND can still think and feel, but their muscles refuse to work. As these nerves die, the muscles weaken and waste, leaving people locked in a failing body, unable to move, walk or talk.

Why should councils adopt the charter?
Many decisions about services used by people with MND, such as social care, housing adaptations and support for carers, are made at the local level by councillors. Currently, there are significant differences in the quality of services available to people with MND locally, depending on where they happen to live. As such, it is important that councillors, and all those working for and with the council, understand the needs of people with MND and their carers. While councils aren’t responsible for everything outlined in the MND Charter, they are a significant part of the jigsaw. When services such as social care and housing are provided in a timely person-centred way, this has a huge impact on the person with MND and their family.MND is a devastating, complex disease and particularly difficult to manage. If a council can get it right for MND, it can get it right for residents with other neurological conditions and disabilities too.

* The MND Association is the only national charity in England, Wales and Northern Ireland that funds and promotes global research into the disease and provides care and support for people affected by MND.

Monday 23 July 2018

Blenheim Park Voice - summer 2018 edition


Lurv HCR

Of course I love Hamlet Court Road. It is where my parents shopped, it is where I have spent many hours, it is where I shop, it is where I reside.

I have had some involvement in the Love campaign, as well as the proposed conservation status for the road. I also had a role in the HCRTA and the Christmas lights and other things they organised before that organisation withered and fell into stasis.

Anyway, I was pleased to support Love Hamlet Court Road yesterday, enjoying tea and toast in one of the excellent cafeterias therein.




Lions after slumber - pride in Southend-on-Sea

I have heard all sorts of numbers for those who attended Saturday's Pride march and after in Warrior Square Gardens. I can only attest to the very significant and large numbers that I was witness to.

Whatever the volumes, it was a really good event and made for a fantastic day. I look forward to seeing a repeat in 2019.

There are many joys in representing Milton ward in the Council chamber, and these sorts of events are just show what a great place it is.

I was delighted to see so many Labour comrades and supporters. I was pleased to see the occasional Tory too. I wonder where the Liberal Democrats and Independents were, but I may just have missed them. I did see a few Green Party friends enjoying themselves.

 Labour in Southend (well, me anyway) has been advocating this sort of thing for a few years now (It’s a queer thing). I can't claim credit for this week's events, but I am pleased to be able to support in my own small way.





Tuesday 3 July 2018

Planning [3]

APPLN. NO: 18/01122/FUL

Officer: Abbie Greenwood
Date Valid. 12 June 201

CHANGE OF USE FROM SHOP (CLASS A1) TO RESTAURANT (CLASS A3) AND INSTALL EXTRACTION VENT TO REAR

MARINER HOUSE 157 HIGH STREET SOUTHEND-ON-SEA


APPLN. NO: 18/01142/FUL

Officer: Kara Elliott
Date Valid. 13 June 2018

CHANGE OF USE OF FIRST FLOOR SOCIAL CLUB (CLASS D1) TO FORM 5 SELF CONTAINED FLATS (CLASS C3) WITH JULIET BALCONIES, ERECT ADDITIONAL FLOOR TO FORM 4 SELF-CONTAINED FLATS (CLASS C3) WITH TERRACES/PRIVACY
SCREENS AND PROVIDE SECURE CYCLE PARKING AND REFUSE STORAGE

1B QUEENS ROAD SOUTHEND-ON-SEA ESSEX


APPLN. NO: 18/00924/FUL

Officer: Kara Elliott
Date Valid. 22 June 2018

CHANGE OF USE FROM HOT FOOD TAKEAWAY (CLASS A5) TO DRINKING ESTABLISHMENT/RESTAURANTS/CAFES (CLASS A4/A3) AND ERECT SINGLE STOREY SIDE EXTENSION

58 MILTON ROAD WESTCLIFF-ON-SEA ESSEX

St Luke's Voice Winter 2018/19 edition